Title: | Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries |
Author: |
... 31 more authors Show all authors |
Date: | 2018-11-20 |
Language: | English |
Scope: | 1144 |
University/Institute: | Háskóli Íslands (HÍ) University of Iceland (UI) |
School: | Heilbrigðisvísindasvið (HÍ) School of Health Sciences (UI) |
Department: | Faculty of Medicine (UI) Læknadeild (HÍ) |
Series: | BMC Cancer;18(1) |
ISSN: | 1471-2407 |
DOI: | 10.1186/s12885-018-5009-y |
Subject: | Lung Cancer; Epidemiology; Audit; Data collection; Datasets; Lungnakrabbamein; Faraldsfræði; Krabbameinsrannsóknir |
URI: | https://hdl.handle.net/20.500.11815/1400 |
Citation:Rich, A., Baldwin, D., Alfageme, I. et al. Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries. BMC Cancer 18, 1144 (2018) doi:10.1186/s12885-018-5009-y
|
|
Abstract:Background: A minority of European countries have participated in international comparisons with high level data
on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and
without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer
services can aspire.
Methods: Using an established network of lung cancer specialists in 37 European countries, a survey was distributed
in December 2014. The results relate to current practice in each country at the time, early 2015. The results were
compiled and then verified with co-authors over the following months.
Results: Thirty-five completed surveys were received which describe a range of current practice for lung cancer
data collection. Thirty countries have data collection at the national level, but this is not so in Albania, BosniaHerzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to
well-established electronic databases with links to census data and survival analyses.
Conclusion: Using a network of committed clinicians, we have gathered validated comparative data reporting an
observed difference in data collection mechanisms across Europe. We have identified the need to develop a welldesigned dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality
data for clinical research.
|
|
Description:Publisher’s Note: Springer Nature remains neutral with regard to jurisdictional claims in published
maps and institutional affiliations.
|
|
Rights:Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
|