dc.contributor |
Háskólinn í Reykjavík |
dc.contributor |
Reykjavik University |
dc.contributor.author |
Islind, Anna Sigridur |
dc.contributor.author |
Johansson, Victoria |
dc.contributor.author |
Vallo Hult, Helena |
dc.contributor.author |
Alsén, Pia |
dc.contributor.author |
Andreasson, Emma |
dc.contributor.author |
Angenete, Eva |
dc.contributor.author |
Gellerstedt, Martin |
dc.date.accessioned |
2021-04-21T16:50:07Z |
dc.date.available |
2021-04-21T16:50:07Z |
dc.date.issued |
2020-10-12 |
dc.identifier.citation |
Islind, A. S., Johansson, V., Vallo Hult, H., Alsen, P., Andreasson, E., Angenete, E., & Gellerstedt, M. (e.d.). Individualized blended care for patients with colorectal cancer: The patient’s view on informational support. Supportive Care in Cancer. https://doi.org/10.1007/s00520-020-05810-5 |
dc.identifier.issn |
0941-4355 |
dc.identifier.issn |
1433-7339 (eISSN) |
dc.identifier.uri |
https://hdl.handle.net/20.500.11815/2550 |
dc.description |
Publisher's version (útgefin grein) |
dc.description.abstract |
Purpose The number of colorectal cancer patient survivors is increasing. Information and support during and after treatment are requested by patients, but questions remain on what to provide. The aim of this study was to understand what informational needs colorectal cancer patients and survivors have, with a focus on the potential support given by patient peers and the use of blended care. Methods A qualitative study using focus groups was conducted with patients diagnosed at the same hospital at least one year prior to the initiation of the study. The focus group interviews were transcribed verbatim and analyzed using deductive content analysis. Results The need for informational support varied over time and depended on individual patient characteristics. Timing was crucial and patients requested options of blended care and informational support after treatment cessation. The patients felt alone after treatment and requested assistance in communication with their next-of-kin. They also identified the value of peer support, especially to contextualize knowledge provided by healthcare. Conclusion This study showed a need for focus on individualized informational support. Blended care through integrating communication with peers online could be one way to support patients, both to enable shared decision-making as well as to provide person-centered care. |
dc.description.sponsorship |
Open access funding provided by University West. The Swedish Cancer Society, Senior Clinical Investigator Award and CAN 2016/509, The Swedish Research Council 2017-01103, The Agreement concerning research and education of doctors ALFGBG-716581 and The Healthcare Committee, Region Vastra Gotaland (Halso- och sjukvardsstyrelsen)VGFOUREG-855181. No financial relationship to declare. We have full control of all primary data and we agree to allow the journal to review our data if requested. |
dc.language.iso |
en |
dc.publisher |
Springer Science and Business Media LLC |
dc.relation.ispartofseries |
Supportive Care in Cancer |
dc.rights |
info:eu-repo/semantics/openAccess |
dc.subject |
Oncology |
dc.subject |
Blended Care |
dc.subject |
Cancer |
dc.subject |
Colon cancer |
dc.subject |
Communication |
dc.subject |
Information |
dc.subject |
Patient information |
dc.subject |
Krabbameinslækningar |
dc.subject |
Aðhlynning |
dc.subject |
Krabbamein |
dc.subject |
Ristilkrabbamein |
dc.subject |
Samskipti |
dc.subject |
Upplýsingaþarfir |
dc.subject |
Sjúklingamiðuð þjónusta |
dc.title |
Individualized blended care for patients with colorectal cancer: the patient’s view on informational support |
dc.type |
info:eu-repo/semantics/article |
dcterms.license |
This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, pro-vide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visithttp://creativecommons.org/licenses/by/4.0/. |
dc.description.version |
"Peer Reviewed" |
dc.identifier.journal |
Supportive Care in Cancer |
dc.identifier.doi |
10.1007/s00520-020-05810-5 |
dc.contributor.department |
Tölvunarfræðideild (HR) |
dc.contributor.department |
Department of Computer Science (RU) |
dc.contributor.school |
Tæknisvið (HR) |
dc.contributor.school |
School of Technology (RU) |