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Individualized blended care for patients with colorectal cancer: the patient’s view on informational support

Individualized blended care for patients with colorectal cancer: the patient’s view on informational support


Title: Individualized blended care for patients with colorectal cancer: the patient’s view on informational support
Author: Islind, Anna Sigridur   orcid.org/0000-0002-4563-0001
Johansson, Victoria
Vallo Hult, Helena
Alsén, Pia
Andreasson, Emma
Angenete, Eva
Gellerstedt, Martin
Date: 2020-10-12
Language: English
University/Institute: Háskólinn í Reykjavík
Reykjavik University
School: Tæknisvið (HR)
School of Technology (RU)
Department: Tölvunarfræðideild (HR)
Department of Computer Science (RU)
ISSN: 0941-4355
1433-7339 (eISSN)
DOI: 10.1007/s00520-020-05810-5
Subject: Oncology; Blended Care; Cancer; Colon cancer; Communication; Information; Patient information; Krabbameinslækningar; Aðhlynning; Krabbamein; Ristilkrabbamein; Samskipti; Upplýsingaþarfir; Sjúklingamiðuð þjónusta
URI: https://hdl.handle.net/20.500.11815/2550

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Citation:

Islind, A. S., Johansson, V., Vallo Hult, H., Alsen, P., Andreasson, E., Angenete, E., & Gellerstedt, M. (e.d.). Individualized blended care for patients with colorectal cancer: The patient’s view on informational support. Supportive Care in Cancer. https://doi.org/10.1007/s00520-020-05810-5

Abstract:

Purpose The number of colorectal cancer patient survivors is increasing. Information and support during and after treatment are requested by patients, but questions remain on what to provide. The aim of this study was to understand what informational needs colorectal cancer patients and survivors have, with a focus on the potential support given by patient peers and the use of blended care. Methods A qualitative study using focus groups was conducted with patients diagnosed at the same hospital at least one year prior to the initiation of the study. The focus group interviews were transcribed verbatim and analyzed using deductive content analysis. Results The need for informational support varied over time and depended on individual patient characteristics. Timing was crucial and patients requested options of blended care and informational support after treatment cessation. The patients felt alone after treatment and requested assistance in communication with their next-of-kin. They also identified the value of peer support, especially to contextualize knowledge provided by healthcare. Conclusion This study showed a need for focus on individualized informational support. Blended care through integrating communication with peers online could be one way to support patients, both to enable shared decision-making as well as to provide person-centered care.

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