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Living with the memories—parents’ experiences of their newborn child undergoing heart surgery abroad : A qualitative study

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dc.contributor Landspitali - The National University Hospital of Iceland
dc.contributor.author Kristjánsdóttir, Ólöf
dc.contributor.author Sjöström-Strand, Annica
dc.contributor.author Kristjánsdóttir, Guðrún
dc.date.accessioned 2022-07-02T01:02:17Z
dc.date.available 2022-07-02T01:02:17Z
dc.date.issued 2020-12-01
dc.identifier.citation Kristjánsdóttir , Ó , Sjöström-Strand , A & Kristjánsdóttir , G 2020 , ' Living with the memories—parents’ experiences of their newborn child undergoing heart surgery abroad : A qualitative study ' , International Journal of Environmental Research and Public Health , vol. 17 , no. 23 , 8840 , pp. 1-16 . https://doi.org/10.3390/ijerph17238840
dc.identifier.issn 1661-7827
dc.identifier.other PURE: 42042293
dc.identifier.other PURE UUID: d4b088e1-052c-47ee-bc0d-3a1f6e0f4be6
dc.identifier.other Scopus: 85096903757
dc.identifier.uri https://hdl.handle.net/20.500.11815/3281
dc.description Funding: This research was funded by the Landspítali Háskólasjúkrahús (A-2020-016), Félag Íslenskra Hjúkrunarfræðinga (B-2020-2004), and Forskningsrådet om Hälsa, Arbetsliv och Välfärd (2018-01399). Publisher Copyright: © 2020 by the authors. Licensee MDPI, Basel, Switzerland.
dc.description.abstract Parents of children with a congenital heart defect needing complex heart surgery are at high risk of developing health problems. One can assume that parents whose child undergoes heart surgery abroad will undoubtably face added and unique stressors and health vulnerabilities. The aim of this qualitative study was to explore the transition experiences of parents of children who underwent a complex heart surgery abroad as newborns 1–5 years ago. The qualitative content analysis methodology by Graneheim and Lundman was used. A purposive sample of twelve parents, whose child had undergone a heart surgery abroad, participated in face-to-face, semi-structured interviews. Interviews were transcribed and analyzed using inductive qualitative content analysis. The overarching theme of “living with the memories” emerged from parents’ experiences, emphasizing the long-lasting impact this stressful event had on their lives. These experiences were characterized by four main categories: (1) being in an unknown situation; (2) feeling connected; (3) wishing to be accepted; and (4) finding closure. The findings show that the transition of having a newborn child undergo heart surgery abroad superimposed on the expected parenthood. That parents need to feel connected and included as legitimate clients was highlighted in their stories of experienced vulnerabilities. The results highlight the need for interdisciplinary teams to support these vulnerable families, particularly with follow-up care.
dc.format.extent 16
dc.format.extent 1-16
dc.language.iso en
dc.relation.ispartofseries International Journal of Environmental Research and Public Health; 17(23)
dc.rights info:eu-repo/semantics/openAccess
dc.subject Hjartagallar
dc.subject Nýburar
dc.subject Hjartaaðgerðir
dc.subject Foreldrar
dc.subject Heilsufar
dc.subject Child
dc.subject Congenital heart disease
dc.subject Content analysis
dc.subject Cross-border care
dc.subject Heart surgery
dc.subject Parent
dc.subject Qualitative research
dc.subject Transitions
dc.subject Cardiac Surgical Procedures
dc.subject Family Health
dc.subject Heart Defects, Congenital
dc.subject Infant, Newborn
dc.subject Pollution
dc.subject Public Health, Environmental and Occupational Health
dc.subject Health, Toxicology and Mutagenesis
dc.title Living with the memories—parents’ experiences of their newborn child undergoing heart surgery abroad : A qualitative study
dc.type /dk/atira/pure/researchoutput/researchoutputtypes/contributiontojournal/article
dc.description.version Peer reviewed
dc.identifier.pmid 33260688
dc.identifier.doi https://doi.org/10.3390/ijerph17238840
dc.relation.url http://www.scopus.com/inward/record.url?scp=85096903757&partnerID=8YFLogxK
dc.contributor.department Faculty of Nursing
dc.contributor.department Women's and Childrens's Services


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