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Parents' friends and families in neonatal intensive care units : A cross-national qualitative study on staff perceptions and experiences

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dc.contributor Landspitali - The National University Hospital of Iceland
dc.contributor.author Flacking, Renée
dc.contributor.author Haslund-Thomsen, Helle
dc.contributor.author Jónsdóttir, Rakel Björg
dc.contributor.author Poropudas, Sini
dc.contributor.author Axelin, Anna
dc.date.accessioned 2021-12-18T01:02:30Z
dc.date.available 2021-12-18T01:02:30Z
dc.date.issued 2021-11-23
dc.identifier.citation Flacking , R , Haslund-Thomsen , H , Jónsdóttir , R B , Poropudas , S & Axelin , A 2021 , ' Parents' friends and families in neonatal intensive care units : A cross-national qualitative study on staff perceptions and experiences ' , Journal of Clinical Nursing . https://doi.org/10.1111/jocn.16139
dc.identifier.issn 0962-1067
dc.identifier.other PURE: 43189769
dc.identifier.other PURE UUID: 0fa4b23d-ee46-4921-ad84-1db8a5484242
dc.identifier.other Scopus: 85119666794
dc.identifier.other unpaywall: 10.1111/jocn.16139
dc.identifier.other researchoutputwizard: hdl.handle.net/2336/622056
dc.identifier.uri https://hdl.handle.net/20.500.11815/2762
dc.description Publisher Copyright: © 2021 The Authors. Journal of Clinical Nursing published by John Wiley & Sons Ltd.
dc.description.abstract Aims and objectives: This study aimed to explore staff attitudes and experiences of parents' friends and families' social presence and involvement in neonatal intensive care units (NICUs). Background: In NICUs, parents need emotional and practical support during infant hospitalisation. Friends and families of parents may constitute the most significant providers in this support, but few studies are available on when and how these ‘important others’ can be present and involved. Design: This qualitative descriptive study was based in the philosophical tenets of naturalistic inquiry. Methods: Seven focus groups were conducted where 67 staff from Denmark, Finland, Iceland and Sweden participated. Data were analysed using thematic analysis. The study was reported following the COREQ guidelines and checklist. Results: The overarching theme showed that ‘important others’ were an unaddressed group of potential supporters in the periphery. The five identified themes described how staff recognised ‘important others’ as the parents' territory, but that ‘important others'’ presence and involvement needed to be negotiated with staff. Although the staff regarded ‘important others’ as necessary for parents' emotional, practical and social support, they felt less obligated to support them as part of their work remit. The staff also felt that inclusion of ‘important others’ was an essential step forward in achieving family centred care. Conclusions: The findings indicate that ‘important others'’ involvement was primarily guided by proactive parents and unit care culture rather than by staff's formal written guidelines or guidance. Single-family rooms seemed to enhance the presence and involvement of ‘important others’. Relevance to clinical practice: There is a need for more staff resources to enable and support the participation of ‘important others’. Parents need to be included during the development of policies to provide their experiences. Finally, more research is needed on what parents wish from their ‘important others’.
dc.format.extent
dc.language.iso en
dc.relation.ispartofseries Journal of Clinical Nursing; ()
dc.rights info:eu-repo/semantics/openAccess
dc.subject Nýburar
dc.subject Gjörgæsla
dc.subject Fjölskylduhjúkrun
dc.subject Hjúkrun
dc.subject family-centred care
dc.subject neonatal care
dc.subject nurse-patient relationship
dc.subject qualitative study
dc.subject support
dc.subject Nýburar
dc.subject Fjölskylduhjúkrun
dc.subject Vökudeildir
dc.subject Intensive Care Units, Neonatal
dc.subject Family Nursing
dc.subject family-centred care
dc.subject neonatal care
dc.subject nurse-patient relationship
dc.subject qualitative study
dc.subject support
dc.subject Nýburar
dc.subject Fjölskylduhjúkrun
dc.subject Vökudeildir
dc.subject Intensive Care Units, Neonatal
dc.subject Family Nursing
dc.subject Nursing (all)
dc.title Parents' friends and families in neonatal intensive care units : A cross-national qualitative study on staff perceptions and experiences
dc.type /dk/atira/pure/researchoutput/researchoutputtypes/contributiontojournal/article
dc.description.version Peer reviewed
dc.identifier.pmid 34816522
dc.identifier.doi https://doi.org/10.1111/jocn.16139
dc.relation.url http://www.scopus.com/inward/record.url?scp=85119666794&partnerID=8YFLogxK
dc.relation.url https://onlinelibrary.wiley.com/doi/10.1111/jocn.16139
dc.contributor.department Faculty of Nursing and Midwifery
dc.contributor.department Women's and Childrens's Services


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